The Fiori Rari philanthropic fund was born from Antonio and Luciana’s profound desire to support scientific research on rare genetic mutations that cause neurocognitive delay and related disabilities.
“When Viola came into our lives 12 years ago, we never imagined we would have to face such a complex and challenging journey related to severe cognitive disability. When we finally received the diagnosis, 6 years after Viola’s birth, we found ourselves faced with a rare ‘de novo’ genetic mutation.
After the initial bewilderment, a glimmer of hope began to emerge as we searched in Italy and around the world for someone who could help us. It was then that we met Professor Stefano Berto, a passionate Italian researcher, who works in the United States at the Medical University of South Carolina, and who was already dedicating his life to studying these genetic mutations.
From that moment, the idea and then the project of concretely supporting this work became a beacon of hope, not only for Viola, but also for all those families who, like ours, find themselves in a similar situation and often feel abandoned in the dark. And without hope for their children’s future.
Alongside research, we wish to do our part to also support organizations that focus on early intervention for children with cognitive disabilities and that offer fundamental support to their families.
La nostra esperienza ci ha insegnato che in questo viaggio è essenziale camminare insieme, perché nessuno dovrebbe affrontare tali sfide da solo.
Thank you from the bottom of our hearts for every contribution and support you wish to dedicate to this project.”
Antonio e Luciana Guida
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